MuscularDystrophy
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Years Ago10 Members8 Watchers
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Is this group still active?
Hello. Is there anyone here with MMD 1 I could interview?
~Wymzy
~Wymzy
i am so happy that u started this group cause it helps promote the awareness of a disability like muscular dystrophy.
I have a good friend with MD, and it haunts me to think he's not going to be around by the time i get back to the US to visit.
Great group 
muscular dystrophy runs in my family, luckily for me I am female so not dirrectly effected - though I am too scared to be tested to see if I am a carrier 
muscular dystrophy runs in my family, luckily for me I am female so not dirrectly effected - though I am too scared to be tested to see if I am a carrier 
Just because your female doesn't mean you won't be dirrectly effected. I'm a female and have SMA tpye 2. And you should be tested just to be sure, it may change your life.
Problem is my mujm refuses to give me the details about it. My doctor said that to test accurately they need informatioon about my brother and cousins form of MD but I'm estranged from my family (they're abusive) and when I tried to contact my mum about it she told me that it would be "irresponsible for me to have kids regardless" so she wouldn't tell me :/ so they can still test me but it will be less accurate. We (myself and my doctor) are currently trying to find a way to get the information from the hospital where my cousins were tested but not sure that will be possible